Saturday, November 1, 2014 · Posted by Alex Richmond, Executive Director
Palmer was never diagnosed. He lived 19 beautiful years, visited with dozens if not hundreds of doctors, nurses, and scientist and underwent multiple genetic testing but he was never diagnosed. Some thought he fell on spectrum of Cerebral Palsy, some thought he didn’t. And at this point, we may never know what underlying ailment or condition triggered Palmer’s central nervous system to not function typically. Palmer’s story is not unique. Today, there are over 14 million children, just in the US, that are living with a neurological condition. And while many of these diseases are now diagnosable, the overwhelming majority do not have a cure. This is unacceptable.
Friday, December 13, 2013 · Posted by Alex Richmond, Executive Director
The World Stem Cell Summit is an annual symposium highlighting advancements in the field of regenerative medicine. CNS Foundation attended as a voice for patient advocates, both speaking as an expert and making a presence at a number of panels across a variety of disciplines. Read more about our experience below!