Thanks Joe Maddon for the Shout Out

A special thanks to Tampa Bay Rays manager, Joe Maddon, for sporting a CNS Foundation Tee during his post game press conference on August 16, 2014... THANKS JOE!!!

Preemie World

PreemieWorld is an online and print magazine created to bridge the gap between parents and professionals in the Neonatal Intensive Care Unit (NICU). With all the challenges that come with bringing home a preemie, PreemieWorld seeks to make daily life a little bit easier. Created by Deb Discenza and Nicole Conn, PreemieWorld uses books, videos, and other products in order to create a new normal in the life of a preemie.

Million Dollar Bike Ride

The Pitt Hopkins Research Foundation (PHRF) will participate in the Million Dollar Bike Ride hosted by the Center for Orphan Disease Research and Therapy (CODRT) at the University of Pennsylvania organized jointly with Rare Disease Cycling. The cycling fundraiser, which starts and finishes on the University of Pennsylvania campus on May 3, 2014, will bring cyclists and disease communities together in hopes of advancing drug development for all rare disorders.

Brain Awareness Week

Brain Awareness Week (March 10-16, 2014) is a worldwide initiative to increase public awareness on the benefits of and progresses in brain research. CNS Foundation is supporting Brain Awareness Week through the growth of the Pediatric Brain Mapping Project.

National Cerebral Palsy Awareness Month

March is National Cerebral Palsy Awareness Month, and March 25th is National Cerebral Palsy Awareness Day. CNS Foundation spoke with Reaching for the Stars. A Foundation of Hope for Children with Cerebral Palsy to learn more about Cerebral Palsy Awareness events taking place throughout the month.

World Rare Disease Day

February 28 will be the 7th Annual World Rare Disease Day. Rare diseases are an important health issue that cannot go ignored.

World Stem Cell Summit 2013

The World Stem Cell Summit is an annual symposium highlighting advancements in the field of regenerative medicine. CNS Foundation attended as a voice for patient advocates, both speaking as an expert and making a presence at a number of panels across a variety of disciplines. Read more about our experience below!